Kidney and Dialysis Related Websites
A wealth of resources are available to help you on your quest to learn more about chronic kidney disease (CKD) and dialysis. Below are several categories with links to other exceptional organizations that help those with kidney disease.
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Organizations and Programs
- Dialysis Patient Citizens
This nationwide, nonprofit patient organization is dedicated to improving the quality of life for all dialysis patients.
- Kidney Smart℠
Find a class in your area or learn online anytime and get the knowledge you need to take control of your health.
- The Kidney TRUST
The Kidney TRUST is a nonprofit organization dedicated to raising awareness of Chronic Kidney Disease.
- National Kidney Foundation (NKF)
Offers education, information, and chapters in most states that you can join. The NKF has also developed clinical practice guidelines for the treatment of kidney disease and kidney failure.
- National Kidney Foundation of Southern California
Learn about kidney disease. Ways to prevent and treat disease, patient programs, links, support groups, organ donation faq’s, and how to help.
- Dialysisfinder.com- Dialysis Center search
Find a dialysis center anywhere in the USA. Search by city, state, or zip code. Facility contact information is also available. Addition resouces available on links page.
- Find a Dialysis Center - DaVita.com
More than 4,000 centers in database. Fill out a Facility Availability Form online or call 1-800-424-6589 and DaVita Guest Services will facilitate your placement.
- Life Options Rehabilitation Program
Dedicated to helping people live long and live well with kidney disease. Offers encouragement and free educational materials, with a special emphasis on staying active through exercise and employment.
- American Kidney Fund
Provides direct financial assistance for kidney patients, and educational programs, clinical research and community service projects.
- American Association of Kidney Patients (AAKP)
AAKP is the voluntary, patient organization, which for more than 40 years, has been dedicated to improving the lives of fellow kidney patients and their families by helping them deal with the physical, emotional and social impact of kidney disease. The programs offered by AAKP, inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances and assume more normal, productive lives in their communities.
- AAKP My Health
AAKP My Health is a unique section of the AAKP Web site dedicated to helping you take charge of your health care. AAKP My Health allows you to monitor your lab values and gives you an idea of what they may mean for your condition, ask more informed questions from your health care team and increase your general knowledge of kidney disease.
- National Kidney Registry
- Renal Support Network (RSN)
A nonprofit, patient-focused, patient-run organization that provides non-medical services to those affected by chronic kidney disease (CKD).
- National Kidney Registry
The mission of the National Kidney Registry (NKR) "is to save and improve the lives of people facing kidney failure by increasing the quality, speed, and number of living donor transplants in the world."
YourKidneys.com seeks to empower and educate people about kidney disease, kidney disease symptoms, diagnosis and treatment through education articles, nutrition information and kidney health tools. Visitors can get helpful information about kidney disease from medical experts, as well as share their experiences on message boards.
- The Nephron Information Center
Allows patient, professionals and the public access to the vast kidney disease resources on the Web. Links. Animated GIFS, preESRD education, Fadem's Kidney Guide
- Understanding Anemia
An introduction to the anemia of Chronic Kidney Disease (CKD).
- How Your Kidneys Work
A thorough but friendly education on the many functions of the kidneys.
- Clinical Practice Guidelines
From NKF's Kidney Disease Outcomes Quality Initiative (K/DOQI). Guidelines on CKD, Hemodialysis, PD, Nutrition, Anemia Management, and Vascular Access, with more under development.
- Type 2 Diabetes
Healthline provides a comprehensive overview of type 2 diabetes as a critical starting point for individuals and/or their loved ones.
- HDCN FreeZone
Presentations on hypertension, dialysis, and clinical nephrology. This organization makes some of its symposium presentations available online with free registration.
- Dialysis-Related Amyloidosis (DRA)
Information from NIDDK: This is a disease of the bones and joints that can arise as a complication of long-term dialysis.
- The Kidneys
Detailed medical description of the many functions of the kidneys. Includes a description of the artificial kidney used in hemodialysis. A University of Minnesota presentation, with lots of technical information about hemodialysis.
- Peritoneal Dialysis
Offers descriptions of what is involved with PD, and tips to make life with PD easier.
- Kidney End-of-Life Coalition
Dedicated to end-of-life care for kidney patients.
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Advice & Inspiration from People with Kidney Disease
- One Man's Story
Photojournalist John Martin chronicles his journey through kidney failure, dialysis and transplant in first person narration and photos. A picture is worth a thousand words!
- Dialysis Support
A very active and helpful patient-to-patient email support group.
- Gil's Kidney Failure Page
Gil shares his story and advice, from long experience with kidney failure.
- Peritoneal Dialysis Information Exchange
This patient-to-patient email support group provides a forum for asking questions about PD or offering information and encouragement to others.
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Recipes & Nutrition
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Specific Kidney Diseases
- IgA Nephropathy Support
Complete IgA nephropathy information from the patient's perspective, with medical advisory board overseer, peer support discussion groups.
Detailed information from eLupus on treatment of kidney disease due to lupus.
- The PKD Foundation
Provides PKD information and encourages PKD research.
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A free service to help you locate dialysis centers closest to you, or centers in places where you wish to travel.
A Guide to Work, Insurance, and Finance for People on Dialysis: Comprehensive information and advice for dealing with work and money issues. Download the whole booklet or look at individual chapters online.
- Kidney Disease Information
Resources and fact sheets from NIDDK.
- Kidney & Urology Foundation of America
KUF focuses on kidney and urology research, nurturing the development of new therapies.
- Transplant Living
Transplant resources from the United Network for Organ Sharing (UNOS), the organization that maintains the U.S. organ transplant waiting list.
- Dialysis Facility
Compare Medicare's site for information on selected characteristics and quality statistics of individual dialysis centers.
- Estimated Creatinine Clearance
Online calculator to estimate creatinine clearance from age, gender, weight, and blood creatinine level (uses the Cockcroft Gault equation).
- Directory of Resources
Renal Web's extensive listing of links and information of interest to people living with kidney failure.
- Home Dialysis Central
UKidney is a provider of educational tools for the study and practice of nephrology, hypertension management, and kidney transplantation. This site features essential educational contributions from major opinion leaders in nephrology.
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