Milk Substitutes

[Tarysa]

I have reviewed a number of articles on the Davita.com website. I am trying to find Dairydelicious milk - but it does not appear to be distributed in Massachusetts. Does anyone know of website where I can order it online -- and has anyone tried it and is it pallitable for drinking straight up - like regular milk?

[maelam]

I just talked to my husband's dietician at the Kidney Clinic and she recommended Original non encriched Rice Dream milk substitute. You might try looking for it, if you have no luck with the one you mentioned.

[Maria]

I'm pretty sure they are out of business.
I have copied this from a previous post to help you:


Here are some milk substitutes that are less than 65 mg phosphorus for 1/2 cup (4 fl oz):

Coffee Mate, creamer 145 mg potassium, 56 mg phosphorus
Coffee Rich, creamer, Rich Products 53 mg potassium, 53 mg phosphorus
International Delight, creamer, all flavors 40 mg potassium, 40 mg phosphorus
Mocha Mix, creamer, 152 mg potassium, 64 mg phosphorus

Rice milk, Rice Dream Original, unenriched, 28 mg potassium, 29 mg phosphorus

Soy milk Soy Dream Original, unenriched Hain-Celestial,120 mg potassium, 50 mg phosphorus
Edensoy soy milk, original, Eden Foods, Inc. 220 mg potassium, 70 mg phosphorus (higher)

Cow's Milk, skim, 1%, 2%, whole- includes protein fortified, nonfat milk solids added types and those without added protein) 175-224 mg potassium, 111-138 mg phosphorus

Half & half 156 mg potassium, 114 mg phosphorus
Cream, light 146 mg potassium, 96 mg phosphorus

Look for unenriched rice or soy milk because the enriched versions contain calcium phosphate--phosphorus is much higher.

[JeffDS]

I'vetried the Original Rice Dream and it tastes pretty close to real milk and works well in reciepes

[maelam]

My husband picked up Non Dairy Rice Dream yesterday, but it didn't say non-enriched or original. Is this the same thing?

[JeffDS]

Originally Posted by maelam

My husband picked up Non Dairy Rice Dream yesterday, but it didn't say non-enriched or original. Is this the same thing?

I am in Canada so the label may be slightly different but it says "Original " halfway down the front of the box, in green lettering that is somewhat difficult to read against the blue background.

If it does not say enriched then it isn't.

The ingredients list does not have any phosphates in non-enriched.

In Canada there is also a list of nutritional facts and in the non-enriched one it shows no vitamin A, C, or calcium, or iron..

[maelam]

Thanks for that info. Ours does not say Original on it, but also it isn't enriched, which is a plus. We will have to wait until we get to the city to find Original.

[maelam]

Thanks for that info. Ours does not say Original on it, but also it isn't enriched, which is a plus. We will have to wait until we get to the city to find Original. It isn't the phosphorus that is my husband's problem, but the potassium. I guess we didn't realize how much potassium there was in regular milk

[JeffDS]

Its not a bad thing to watch your phosphorus intake though.

I am only restricted for sodium so far but have also been watching that I don't get too much protein, potassium or phosphorus either. Enough to get along with is ok, any more than that and its your kidney's job to flush it out.
Make life easy for the kidneys without depriving your body of essentials is the name of the game.

Also watch for calcium and magnesium.


While its not really a subject of this subforum...I often warn people who are going for a colonoscopy that they should use the older prep known as Golytely. The phospha sodas are really dangerous(even for those with good kidneys) and the pico-salax types are magnesium based. Magnesium is only excreted via the kidneys.

The glycol mixes such as Golytlely do not get absorbed by the gastro intestinal tract. they taste bad and you have to srink a gallon of it(phospha sodas taste worse but only a few oz's)

[Tarysa]

Thank you, This information is very helpful. I'm actually caring for my uncle who is a dialysis patient and he has been missing his milk. He's tried the coffee mate and Rich's Coffee milk - but says both of them taste like cream and he can't just drink it straight up like he used to do with regular milk. I will try the rice milk next.

All of you have been very helpful. Thank you for your posts

[eaglewoman]

I use Land Of Lakes fat free 1/2 & 1/2, it has less potasuim and phosphorus than even rice mild and taste much better. Use as little as possible on my cereal.

[jeffmoore]

Originally Posted by Tarysa

Thank you, This information is very helpful. I'm actually caring for my uncle who is a dialysis patient and he has been missing his milk. He's tried the coffee mate and Rich's Coffee milk - but says both of them taste like cream and he can't just drink it straight up like he used to do with regular milk. I will try the rice milk next.

All of you have been very helpful. Thank you for your posts

I read your post about the concern of milk, have you tried mocha mix, if your patient is not a diabetic, I have used mocha mix with a little sugar to make it a little sweet tasting, I was recommended mocha mix by my dietitian when I first started hemodialysis, back in 1990. On ocassion I would drink a half a glass of low fat milk, but I would take extra phosphorus binders for good measure. This wouldn't be harmful, if your uncle is non-diabetic. I have PKD, and my sole diet is renal. It would help if a patient has issues w/ their diet, that they would specify if they are diabetic or non-diabetic, because it truly is important where their renal diet is concerned. Let me know what solution you come up with for your uncle.
Best Regards,
Glo

[Tarysa]

I actually have stumbled onto a drink that he enjoys – more than milk, or so he says. Davita.com has a recipe for "non-dairy ice cream". It consists of non-dairy creamer, sugar, and egg beaters. He missed ice cream also, so I began making this for him. I used to make candy and fudge and went to my favorite website to check out flavorings and extracts to see if I could use them for him. His Davita nutritionist approved the ice cream/fountain drinks flavorings, as well as the extracts – which can be used by dialysis patients as they are derived from steaming essences of the actual foods – but do not actually contain the actual foods – (for instance the ice cream flavoring has the flavor of chocolate – but doesn't actually contain any chocolate).

So, I have been making him ice cream (strawberry, chocolate fudge, orange cream, banana-coconut, etc.) which he then measures out to his fluid allowance and puts the ice cream in a blender to make 'ice cream shakes' that he can drink. Lately he has also just asked me to just chill the flavored mixture rather than putting it into the ice cream maker – and he just drinks it like flavored milk.

I also use the other flavoring extracts when I make baked goods – like making peanut butter flavored cookies – and chocolate flavored cake and frostings. He loves them – says he feels like he's cheating – but he isn't cheating at all.

This will also help with his protein levels and hopefully his weight gain – because he's now drinking protein in the shakes (from the egg beaters) and getting the extra calories from the sugar.

I did substitute the 'non-dairy creamer' with non-enriched rice milk because I didn't like the Trans Fats that were in coffee mate. I also added "arrowroot crème" which is actually just 1 tablespoon of arrowroot powder mixed with 1 to 2 teaspoons of rice milk. Once I have cooked the mixture, I blend in the arrowroot crème – this helps thicken the mixture and prevents the formation of ice crystals in the ice cream so it has better mouth appeal.

It doesn't help if you want just a plain milk substitute – but if you want to try flavored milk or milk shakes, it works really well. I suppose if you are diabetic you could substitute the sugar with nutra sweet or other organic sweetener that doesn't raise your blood sugar too quickly – or if you wanted to make fruit flavors, substitute fruit puree for the sugar.

[Tarysa]

Oops! The website for the flavorings is Lorannoils.com - go to the lorann gourmet section and check them out. It's great because they have small amounts which I get first to see if he likes them - then I can order the larger sizes of his favorites.

[leejane30]

well at least, some people are now aware what are the possible substitutes for milk. right?