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#1 |
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Junior Member
Join Date: Aug 2009
Posts: 2
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Hello I just found out last January I have CKD and im 23 years old. But I found out i was pregnant 2 weeks later. I just had my healthy baby girl 5 weeks ago. She came 6 weeks early. But I just found out that im at a stage 4. Kinda scared because i want to see my little girl grow up. but i keep reading stories on here about people that have been doing good for years and having CKD. So it gives me hope. My blood pressure is 154/104. Im just wondering how much longer i have tell i need dialysis? And what is your story? Thanks Desirae |
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#2 |
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Member
Join Date: Sep 2009
Posts: 47
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Congratulations on your healthy daughter! Aren't you both fortunate and blessed!
My one advice to you is to get your blood pressure under control. Control your sodium intake, and oh yeah, don't nurse the baby. It takes so much out of your system to nurse, and trust me, you need all the bone health you can get. My story is throughout these threads if you're interested in mine. You are so young to be dealing with near end stage kidney failure, and I'm sorry...I'm right there in the stage 4 with you. Learn all you can about eating and exercising, and maintaining what you have left. God bless you.
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I Am Blessed--beyond that which I deserve! Stage 4 CKD "God is too wise to be mistaken. God is too kind to be unkind. When you cannot trace the hand of God, you can always trace His heart." ~Charles H. Spurgeon |
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#3 |
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Junior Member
Join Date: Nov 2008
Posts: 17
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Congratulations on your new baby!
My best advice to you is to start researching kidney transplants. At Stage 4 you should be learning about dialysis and transplant to decide which route you want to take. The transplant process using a living donor takes many months, sometimes years, so you don't want to wait until you start dialysis to start preparing for a transplant. If a transplant is the best option for you, get established with a transplant center, get on the deceased donor list, and start looking for a living donor. A preemptive transplant (one that happens before you start dialysis) gives you the best chance for the longest and healthiest life you can have. I am in stage 4, have not started dialysis, and am receiving a kidney from a living donor this coming tuesday, november 10th. My journey has been an incredible experience and I know there is lots more to come! Good luck to you! Heidi |
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#4 |
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Member
Join Date: Oct 2004
Posts: 62
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my son was diagnosed 6 yrs ago w/ CKF...he just had a pre-dialysis transplant on Oct. 6; He hovered at 21% for almost one year before suddenly dropping down to 12% and then transplanted 6 weeks later. He's 16 now and it's been a long road, we started at stage 3 (6 years ago). My husband was able to donate a kidney to him and it started working on the OR table before they even closed up, which is a big blessing. He never had to endure dialysis, which is also a blessing. He's had alot of bad days, but we are hoping that he will be recovered soon and start enjoying his life.
Don't wait to find a donor if you want to go that route..the process is long and lots of testing involved for the possible candidate. This does seem like the best way to have a longer, normal life w/o the interuption of dialysis. You can always look for a donor and have dialysis as a backup. Success to you on your journey... Lynne |
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