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One place to begin your search for support is on the myDaVita Forums. There you will find various topics where you can introduce yourself to the community or dive right into a specific discussion. Whether you are an in-center hemodialysis patient or a home hemodialysis (HHD) patient, there are places on the forums that are specific to what you are looking for.
Because peritoneal dialysis (PD) is another type of home dialysis, interacting with fellow PD patients in person on a regular basis can be rare. That's why the myDaVita Forums provide a good opportunity to converse with people you can relate to. From dialysis treatments and the kidney diet to lifestyle issues and care partner concerns, it's easy to connect with people sharing your concerns and similar stories.
Ask why they don’t want dialysis. People often believe they will have a poor quality of life “on a machine.” If many other illnesses are present, this may be true. Others find that with a trial period of dialysis for a month or two, they feel much better and can have a full and active life. Only the person who needs dialysis can decide what’s right for him or her, but it may help you both to talk to other people who are living with dialysis. Perhaps their doctor could help you arrange this.
Your renal social worker, nurse or doctor can answer your questions. They can also point you to groups where you can find extra support. Here are additional resources you can tap into:
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